I Have Lupus, Lupus Doesn't Have Me!

 

 

Have you been diagnosed with a chronic illness?  An illness or condition that is silent to everyone around you but you hear it loud and clear?  Do you have people saying "You Don't Look Sick" or "it's all in your head"?  Sounds all too familiar doesn't it?  

 

You Are Not Alone!  I have Lupus and let me tell you, some days it is a huge struggle just to walk or focus on anything.  But I do.  I have to, I have no other choice.  Does that sound familiar too?

 

You never know what someone is dealing with in life and you wish people would be as sensitive to this as you are to others.  People really do not understand unless they are in your shoes.  

 

I wouldn't wish this on anyone that is for sure!  I find focusing on the positive helps a lot when dealing with illness.  I have had my fair share of it and have and continue to deal with chronically ill family members.  

 

Find a focal point daily, it could be something as small as a seashell to be able to hold onto when you feel ill, pain or depressed in your situation.  Maybe you are so down and out you can't even focus on that.  Then just be, let yourself just be and try not to focus or think.  It is ok to take time out to heal or rest as your body needs.  Tomorrow is another day and for goodness sake the chores will be there don't worry.  

 

Don't stress!  I cannot stress this enough,  you are hurting no one but yourself and it will accomplish nothing.  

 

Accept your situation, you don't have to like it but accept where you are.   It doesn't mean you have to stay ill either, a positive attitude mixed with some good ole laughter is great medicine!

 

Proverbs 17:22 (International Standard Version)

A joyful heart is good medicine, but a broken spirit drains one's strength. 

 

It is not easy, life was not promised to be easy.  It is through the storms we find our strength and courage.  Reach out to others with chronic illness online or in a group.  It helps as sometimes you just need a shoulder to lay your weary soul and regroup yourself.  It is ok!

 

Never let anyone make you feel ashamed or outcast because of your illness!  Sometimes if people don't understand, they may say things to you but may not necessarily know how hurtful they are.  I've had someone say "you can't be lazy, you have to get up and fight it".  Say what?  Lazy, just because I can't function like a "normal" person?  Fight it, if they only knew the fight it is daily to do simple chores.

 

That is just it, they do not know and therefore cannot truly see how strong you really are under it all. Forgive generously, for they do not know.   Don't hold grudges, it will not help you.  If you cannot get past what has been said or if this person or people are constantly badgering you, you may need to disconnect from them for your own health.  You do not have to please the world, take care of yourself.

 

Don't give up, It is not an option if you want to live and go on.  You are special and unique, celebrate it. You may need to set new priorities for your life, that is hard to get used to but in time you will learn what works and what doesn't.  You may even fight it and keep trying what doesn't work but be careful, it can be a fine line and wear you out more often than you want it to.  I have been here, I love to help people and tend to over schedule and say "yes" much more than my body allows.   

 

I have learned the world will go on without my involvement in every detail.  Enjoy the small things, a cup of your favorite drink (mine is coffee) on a sunny morning soaking in silence.  Letting yourself just be still where no demands come upon you.   Watch a movie or have a movie marathon.  Whatever it is that lets you relax and separate from your busy life, go for it (as long as it doesn't harm you or anyone else).  

 

I am here for you!  Reach out to me.  Remember, keep on keeping on and Just Be You my friends.

 

 

 

 

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